Lewy Body Dementia

There but for the grace of God go I. Lewy Body Dementia. Look it up if you’re looking for yet another chink in the armor of this loving God of grace. Or if you’re more modern, explain to me why evolution would evolve such a thing. It’s a cocktail, not to be enjoyed surely, but jammed down the throats of the unsuspecting; a mix of Alzheimer’s Disease and Parkinson’s Disease with a double-shot of hallucinations tossed in for good measure. Shaken. Stirred. Scared. To death.

“Dad, are you all right?”

Eyes of terror, hands shaking, trembling in the middle of the familiar family room.

“No.”

“Can I get you anything?”

“Yeah, a casket.”

It’s one of the sickest parts of the sickness, this in and out of reality, with little of the blissful ignorance that can accompany some forms of dementia. Just confusion, then awareness, then terror, then anger, then anxiety, then awareness, then frustration, then and again and again and again.

The hallucinations started out fascinating, even funny. “Do you see that garden party over on the Johnson’s lawn?”

“No.”

Or

“Do you see the couple standing on the rocks down by the lake?”

“No.”

“Well, then, what about their dog?”

They got less funny over time. Long, complex hallucinations he recounted later. The three women who put him in a car and took him across the country, stopping at gas stations, not letting him out of the back seat. The same three women who would show up unexpectedly in the house. “I don’t know how they get in here.” Then maybe funny: “But damn they work hard around here. Never seen anything like it.”

He’s moving into memory care now and if anyone’s memory needs some care, it’s his. It’s the sickest thing I’ve ever seen, this Lewy Body business. Reduce a once proud, hyper-intelligent, orthopedic surgeon, to a trembling, mumbling “resident” (read “patient”).

There are moments of transcendence, fewer and farther between these days, but, still, and occasionally.

I love my dad. I hate this fucking disease.

Minnesotans are beside themselves

Minnesotans take a certain pride in winter. Lesser mortals couldn’t survive here and so we go so far as to sing the praises of blizzards and below zero temperatures. It builds character and culls the herd. Population control. Let the weak leave, and leave the strong behind!

So why then is this particular winter bringing out the mad whiners in so many of us? Everyone is pissed! I went outside one morning recently and saw five inches of new snow, with drifts over my driveway and screamed: #$#@#%!!!!! A neighbor a few doors down thankfully didn’t hear the actual message but only the sound of the shout and turned and waved.

I would argue it’s the worst winter in recent memory. Biggest snowfall? No. Coldest temperatures? No. But a constant onslaught of cold and snow and snow and cold. The best of us are bitching like teenagers forced to stay home, eat only broccoli and do advanced placement homework – every freaking day of the year.

I don’t think I’ve ever seen it like this. Our proud stoicism has frozen to icy anger. We feel let down as if winter had always been this devil to which we’d sold our souls and agreed that you kick our ass some and we’ll stay by you as long as you keep the hoi polloi at bay. But it seems winter has changed the details of our deal. Winter just keeps on kicking and kicking and kicking, and we’re getting a little ticked off – no, a lot ticked off! And the hoi polloi? I’m constantly pushing them out of the driveways they didn’t think to shovel at all.

I used to see a cross-country skier and think, way to go, man! Now I see them and recognize only the stupidity of their actions. You, my friend, are giving in to the enemy. You cannot enjoy this torture! Go home! Drink bourbon in front of a fire and let us plan together our flight to the land of the weaker mortals. We could rule those fools and that simple land! We will never again scrape thick ice from our cars! Never again spin our tires and slip backward on tiny inclines! Never again will we spend untold hours shoveling and shoveling and shoveling, just so someone can walk down our clear sidewalks!

Instead we will sit upon a beach with our toes in the sand, the salt water washing over our feet. That is what we will do! Together! It will be spectacular!!

That is, after tomorrow, after the plows go by and leave a three foot ice wall between our cars and the icy roads. After we take our plastic shovels and slowly chip away at that wall as our fingers devolve to tiny, dying icicles. Right after that! We all leave! Together!

I Resolve to Tweet More?

I struggle with the social media landscape only because it moves much faster – quicker – than I do. My mind is old school. I prefer a conversation or an article and find a tweet or a post lacking. I know that’s the point – the whole 140 character limit and all that with Twitter, particularly – but sometimes it feels like someone walking by the house, opening the door, shouting “Check out this great article on winter bicycling!” slamming it and leaving. “What? Who? Where?!”

But I’ve made it a resolution to embrace it as best I can. Hashtag that, my friend, and wish me luck.

I dig resolutions. I dig New Years entirely. It’s an opportunity to do a time-check. Feels a bit like flipping that Etch-A-Sketch over and giving it a good shake. (RIP Etch-A-Sketch inventor, Andre Cassagnes, who passed in 2013.) I can make grand statements about what I plan to do better, more, less and so on. And sometimes, though not often, they stick, a little.

Every year I resolve to be more focused, follow through, drink less, run more, yell around the house less, hug the kids more (impossible, they’d be smothered), eat out less, eat in more, drink less (that deserves a second nod), pay more real attention to my lovely wife, fix up the house, fix up the yard, …

And I feel hopeful, like it might happen – or some of it. And why not? It’s a brand new year! The perfect opportunity make today the first day of the rest of my life! (That’s from an old commercial, I think. God bless the marketers.)

I told my kids this morning that 2014 is “The Year of Daddy.” They said, “No, it’s not.” “The year of listening more to mom and dad!” “Nope.” “The year of being nice to one another!”

How about that? That’s a good one for us all – politicians, priests, family, strangers, friends and foes. Let’s resolve to be nice, accept differing opinions – we can disagree without demonizing, tearing one another a new one, lying, cheating, bitching, complaining, or even blowing up a teeming marketplace.

Less horrifically in the particular instance, but plenty rotten in the aggregate: What inspires someone, say, BlueBlood42, to feel the need to rip into, say, LadyFirst63, in the comments section of some article? BlueBlood42 hides behind a pseudonym and attacks another pseudonym. The result is simply, well, there is no result. Resolve that crap out of your life.

I lift my beer (struggling with the drinking one) while burping up a little Taco Bell (ditto eating better and eating in more) and say to one and all, Happy New Year.

Stay tuned for my next tweet. It will be momentous! Although frustratingly short, at least, for me.

Perspective from the Mini Van

I was driving the other day with my daughter in the back seat when she asked, “Papa, are we rich?

I looked around me at the cracked and worn interior of our ten-year-old rusted Mazda Protégé, glanced at the 126,000 miles on the odometer and noticed the always-on engine light. My mind wandered to our other 10-year-old mini-van, our 1,100 square foot house in need of windows, siding, and roof among other repairs and thought about the piles of debt our family had, laughed a little sarcastically, and said, “No, Olivia, we are not rich.”

Then it dawned on me and I added, “Actually, we are rich.”

“We have our own home with a roof over our heads, that we can keep 70 degrees when it’s 30 below and 68 degrees when it’s 100. We have more than a thousand square feet in there – plus the basement! We have two cars that run – with just two drivers in the house. We have a pantry, refrigerator and freezer that are bursting with food – there’s no room to put anything more! We get new clothes constantly. We have so much stuff that we get to go to the Goodwill twice a year and give a box or two away to people who are not as rich as us! We have computers, an iPad, smartphones, internet access, and cable tv.”

I was just getting started.

“We have a brand new street in front of our house, and roads to take us anywhere we want to go that are lit at night. We have free parks, schools, and libraries all around us. We have wonderful family and great friends who love us and we love back. We have amazing neighbors. We have our own business that provides six darn good jobs. We are surrounded by great little Vietnamese, Thai, East African and good old American restaurants that we have enough money to enjoy!”

“Yeah, there are a lot of people with much more than us and many with much, much more, but there are a hell of a lot more people on this planet with much, much less! We are blessed! So, hell yes, Olivia, we are rich!!

I half expected some applause to accompany my goose bumps, but when I looked in my rear-view mirror, my little girl was just gazing out the window of the van at the world passing by.

“Pretty sweet, huh?” I asked, and she turned, met my eyes in the mirror and smiled.

“Yeah.”

clueless 1

I’ve had my acoustic guitar for many years – possibly ten. My wife bought it for me for one Christmas and since I’ve been playing it constantly to the point where it really does feel like an extension of me. When I see it across the room I want to hold it and play it. I want to strum it and sing with it. I want to harmonize with it. I was staring at it just now and noticed the brand and realized that at any time over the last ten years if anyone would have asked what kind of guitar I had I would have only been able to say, “acoustic.” If they pressed for the brand I would have had no idea! I saw the name just now: “Cort.” It’s a Cort. My guitar is a Cort and as much as I’ve loved it, I could never have told anyone that that it was/is a Cort – and there’s probably another name as well – The X44 or The Chrysalis. It’s like not knowing the name of your wife. I feel terrible – because I never knew, and also because now I do.

Cort. No, just my guitar.  I’ve never been good with names.

The art of knowing you’re no artist

A good buddy of mine suggested painting lessons recently because essentially I suck at painting. I really do. I definitely suck from most people’s point of view – t’were it you saw my so-called paintings. That’s because I’ve no training at all. Nor do I with music or sculpture. All things I do a lot.

So there sort-of begins the conversation, right? I do these things without any formal training but only, and maybe selfishly, because I really, really dig doing them. I shape heads out of clay. I paint faces on whatever surface I want to – actual canvasses, basement floors, walls, beams, sheets of already printed-on paper. I grab my guitar, play chords poorly, and sing whatever the hell I’m thinking at that moment. And I have the gall to record it, douche bag that I am.

And now don’t be surprised, but none of it is winning any awards.

I know it might be pure laziness that I don’t take the time to learn how to paint an apple in the manner that the masters have. “You must paint an apple, before you can paint a tree,” I can imagine my zen-like artist teacher telling me. But I really don’t want to paint apples. I like painting silly, ever-evolving, cartoonish faces, all the time.

I bought my first 50 lb box of clay without anyone telling me even what the hell was in the box. Clay-like stuff, I figured, rightly. And since then I’ve shaped heads – lots of them. Should I have copied the great works to learn how to sculpt? Certainly, to learn how to sculpt like the masters, but I kind of just wanted to make heads and whatever heads came out of some hours of grabbing, slapping, rolling and shaping the clay, were exactly the heads I really, really wanted to make. That’s why I bought the clay.

It’s like that horrible cliché – it’s the journey and not the destination. But in this case it’s really true. The joy is in the process, the work, and the serendipitous outcome of non-talent meeting rigor. A passionate idea evoked through the foggy lens of a cipher – just some guy messing around with notes, or colors, or clay. It ain’t great, I promise you that. It may not even be art. But it’s me, really quite unfiltered by actual teaching or maybe even talent.

But it’s all good because I don’t want to be good. I just want to do it. I’ve no designs on being an artist, but I do like to make shit up.

the difference between one and not the other – four random recent things written down

The difference between one and not the other will never make sense.

The straight makes the not-straight great.

The static nature of anything is nothing,

It’s really hard to do anything authentic in a stadium.

 

not to be all critic guy but the wait for daft punk’s finally fucking here album Random Access Memory was well worth it.