There but for the grace of God go I. Lewy Body Dementia. Look it up if you’re looking for yet another chink in the armor of this loving God of grace. Or if you’re more modern, explain to me why evolution would evolve such a thing. It’s a cocktail, not to be enjoyed surely, but jammed down the throats of the unsuspecting; a mix of Alzheimer’s Disease and Parkinson’s Disease with a double-shot of hallucinations tossed in for good measure. Shaken. Stirred. Scared. To death.
“Dad, are you all right?”
Eyes of terror, hands shaking, trembling in the middle of the familiar family room.
“Can I get you anything?”
“Yeah, a casket.”
It’s one of the sickest parts of the sickness, this in and out of reality, with little of the blissful ignorance that can accompany some forms of dementia. Just confusion, then awareness, then terror, then anger, then anxiety, then awareness, then frustration, then and again and again and again.
The hallucinations started out fascinating, even funny. “Do you see that garden party over on the Johnson’s lawn?”
“Do you see the couple standing on the rocks down by the lake?”
“Well, then, what about their dog?”
They got less funny over time. Long, complex hallucinations he recounted later. The three women who put him in a car and took him across the country, stopping at gas stations, not letting him out of the back seat. The same three women who would show up unexpectedly in the house. “I don’t know how they get in here.” Then maybe funny: “But damn they work hard around here. Never seen anything like it.”
He’s moving into memory care now and if anyone’s memory needs some care, it’s his. It’s the sickest thing I’ve ever seen, this Lewy Body business. Reduce a once proud, hyper-intelligent, orthopedic surgeon, to a trembling, mumbling “resident” (read “patient”).
There are moments of transcendence, fewer and farther between these days, but, still, and occasionally.
I love my dad. I hate this fucking disease.